Informed Consent

Definition

Informed Consent is the study and design of how people establish, exercise, verify, delegate, constrain, revoke and recover control within consent infrastructure.

Why this matters

Failures in informed consent can expose people to identity fraud, unauthorised decisions, coerced data use, loss of access, unfair exclusion, surveillance and diminished human agency.

Research questions

How can informed consent be designed and governed so that identity, consent and authority remain accurate, understandable, revocable, contestable and aligned with the person’s actual intentions?

Hypotheses

A purpose-limited, evidence-backed and revocable approach to informed consent, with explicit authority boundaries and human-readable controls, will improve user agency, reduce misuse and increase decision legitimacy compared with opaque, bundled or non-revocable approaches.

Proposed methods

policy and standards analysis; consent-flow mapping; identity and access-control testing; user research; threat modelling; adversarial simulation; usability and comprehension testing; audit-log analysis; rights-impact assessment; methods adapted specifically to Informed Consent

Stakeholders and beneficiaries

individuals; families; workers; consumers; platforms; governments; identity providers; regulators; legal practitioners; financial institutions; health and social services