Biological & Neural Integrity / Neural Privacy
SUB-T05-010Neural Data Ownership
Definition
Neural Data Ownership examines rights and responsibilities concerning control, transfer and commercial use of neural data within the broader domain of the privacy, ownership, inference, retention and protection of neural and mental-state data.
Why this matters
Failures concerning rights and responsibilities concerning control, transfer and commercial use of neural data can cause physical or psychological harm, loss of function, privacy invasion, identity compromise, exclusion, coercion or irreversible impact on human agency.
Research questions
Under which conditions can rights and responsibilities concerning control, transfer and commercial use of neural data be delivered, measured or protected reliably, and how do outcomes vary by person, device, duration, context and governance controls?
Hypotheses
A transparent, safety-bounded and person-centred approach to neural data ownership, combining validated measurement, informed consent, privacy and security controls, human oversight and longitudinal monitoring, will improve benefit–risk outcomes compared with opaque or technology-centred approaches.
Proposed methods
privacy threat modelling; neural inference testing; consent comprehension studies; data-flow mapping; security assessment; policy analysis; user-rights evaluation; expert and affected-user review; reproducibility testing; methods adapted specifically to Neural Data Ownership
Stakeholders and beneficiaries
neurotechnology users; patients; researchers; clinicians; privacy regulators; device manufacturers; employers; insurers; civil society